Adventures with the Tuleys!

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A Package!

November 21, 2018 by Amy Tuley 12 Comments

In October's post, I mentioned something we were super excited about, but couldn't yet share. Today's the day!!! Backstory: During Josiah's intensive therapy, he worked on putting on and zipping up a coat. While for most of us, this isn't a … [Read more]

October 2018 Family Update

November 12, 2018 by Amy Tuley 2 Comments

October was quite a busy month for us this year! Josiah worked two weeks with his intensive therapy, we celebrated Grace's birthday, spent a few days in Branson with my parents, dentist appointments, haircuts, and doctor visits. One simply had a … [Read more]

Never Be the Same

October 3, 2018 by Amy Tuley 7 Comments

Six years ago today, Josiah went to the operating room at 8:35 a.m.  We anticipated surgery to be complete around 4:00 that afternoon.  At 10:15 that night, the neurosurgeon came out to talk with us after surgery was finally complete.  Our oldest … [Read more]

Feeling all the Feelings

September 20, 2018 by Amy Tuley Leave a Comment

Pretending to be a bug when taking a snack break! Josiah has started intensive therapy. Intensive = 45 hours of physical therapy, 40 hours of occupational therapy, and 20 hours of speech therapy in 20 days.It's been a good week so far. Our … [Read more]

Botox update – Sept 2018

September 4, 2018 by Amy Tuley 1 Comment

First off, thank you to everyone for all your prayers! Josiah did absolutely amazing getting the iv in his arm! There was no nervousness, tears, or stress involved, and that's a rare thing, especially when getting botox. His doctor was shocked when … [Read more]

September 2018 update

September 3, 2018 by Amy Tuley Leave a Comment

It's hard to believe summer is over and school has started up! Josiah loves school and tells us every day, “It was awesome!” Everyone else is enjoying school as well.Josiah has botox in the morning. (Tuesday, September 4.)  We'll be at the … [Read more]

Quick July 2018 Update

July 20, 2018 by Amy Tuley Leave a Comment

Summertime! We've been having a great summer! We've visited Dallas with Nathan and his work with Pioneer Bible Translators (PBT), and the kids have stayed busy with church camp/activities, visiting grandparents, enjoying their two new kittens, and … [Read more]

The Miracle, and a Quick Update

May 10, 2018 by Amy Tuley 5 Comments

The Miracle This boy. His MRI is coming up on May 23rd. If the results are good, he moves to yearly MRIs. I never thought we'd reach this point. It seemed so far away. One major brain surgery, vision loss, a stroke, seizures, 16 months of … [Read more]

Intensive Therapy – Feb. 2018

March 21, 2018 by Amy Tuley 6 Comments

Intensive Therapy During the month of February, Josiah took a month off of school to focus on Physical (PT), Occupational (OT) and Speech therapies.  Over the course of four weeks, Josiah had 3 hours of PT 5x/week, 2 hours of OT 3x/week and 1 hour … [Read more]

Therapy, CP Clinic, and a New Leg Brace

February 11, 2018 by Amy Tuley Leave a Comment

The past two weeks have been very busy with appointments!  Josiah even got a much needed haircut!Therapy Evaluations First, Josiah had speech and OT therapy evaluations completed. He did great with these and really hit it off with the new … [Read more]

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