Josiah had his visit with the endocrinologist yesterday morning and it went really well. Here’s a quick re-cap of the appointment:
We are able to do the lab work for his thyroid when we go in for the Botox appointment on March 22nd. One of his medications needed to be increased because he’s grown a little bit. Josiah’s growth curve is still concerning, and the doctor believes that he would benefit from growth hormone. He will have growth hormone testing done, likely in June. The testing is done at the hospital with an IV. My best understanding is that they give something through the IV that stimulates growth hormone production; but if growth hormone isn’t being produced, none will show up in the blood. (It’s obvious I don’t have a medical degree!)
I’m hoping the testing can coordinate with when he’s at the hospital for the MRI and more botox. I don’t mind coming in for appointments; it’s the multiple needles and pokes we try to avoid for Josiah. The hormone cannot be started until after the June MRI results, so it’s not a huge rush at this point. (Basically, if there is tumor growth found in the June MRI, he would not be able to receive growth hormone.) The doctor reviewed all the risks again with me, and all are small percentages, which is encouraging; and the benefits outweigh the risks as well.
Josiah was as happy and friendly as ever at the appointment and was happy to come home and tell everyone, “My doctors appointment went well.” We heard that several times today actually. 🙂