Adventures with the Tuleys!

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December 2016 MRI

December 8, 2016 by Amy Tuley Leave a Comment

December 2016 MRI

December 8, 2016 Josiah and I were up at 4:30 yesterday to make granola bars for breakfast. He wasn’t able to eat or drink after 6, but since he woke up extra early, I took advantage of getting him some food and drink while he still could! We dropped Grace off at school and the […]

Filed Under: Josiah's Journey, MRI Tagged With: Josiah, journey, MRI

Coffee, Toothpaste, & Nerfing

November 17, 2016 by Amy Tuley 4 Comments

Coffee, Toothpaste, & Nerfing

I have time to blog today!!!  Nathan and I are in Lexington, Kentucky this week at the International Conference on Missions (ICOM).  We left early (3am) Wednesday morning to help set up Pioneer Bible Translators’ booth.  They actually take up multiple booth spaces, but the display is pretty cool.  Today, we don’t have anywhere to be […]

Filed Under: Family and Fun, Quotes, Real & Honest Tagged With: blessed, family, Josiah, Photos, Quotes

October 2016 Medical Update

October 25, 2016 by Amy Tuley 8 Comments

October 2016 Medical Update

Hello again! I’ve not completely given up on writing, it’s just not been my top priority lately. Between moving, getting settled, adjusting to the routine of our new middle schooler, additional therapies and preschool schedule, keeping up with homeschooling, along with the daily cooking, cleaning and laundry, it’s been a crazy few months. However, things […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, Therapy, Update

Growth Hormone Shots

August 23, 2016 by Amy Tuley 1 Comment

Growth Hormone Shots

It’s been about six weeks since Josiah started his growth hormone shots. The Shot: We call Josiah’s growth hormone shot a “pen poke” because it’s not like a shot or vaccine you get at the doctors office. It’s actually a pen that automatically dispenses his dose for us. We put a new needle on the pen […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Josiah, journey

July 2016 Photos

August 8, 2016 by Amy Tuley 2 Comments

July 2016 Photos

I wasn’t able to get pictures posted when I gave my Quick Update, so here’s a fun post with photos to show what all we’ve been up to lately! 4th of July Josiah doesn’t like fireworks, so he stayed inside, but the other kids had fun! Grace’s Haircut She donated to Children with Hair loss […]

Filed Under: Family and Fun Tagged With: family, kids, Photos

Quick update July 2016

August 5, 2016 by Amy Tuley 2 Comments

Quick update July 2016

Wow you guys! So much has happened since I last updated at the end of June. I’ll sum it up for now, and hopefully give more details in posts to come. (You know, in all that free time I seem to have!) 🙂 Last week of June: During the last week of June, Samuel was […]

Filed Under: Family and Fun Tagged With: Declare, family, Update

More Appointments

June 25, 2016 by Amy Tuley 4 Comments

More Appointments

Well this was a long week filled with appointments! Here’s a quick rundown from our week: Monday – 2 hour interview with neuropsychologist. (Mostly Nathan and I visiting with the Dr.) Tuesday – 2 hour testing with neuropsychologist (Josiah was tested while Nathan and I waited in the waiting room.) We will discuss the results July […]

Filed Under: Medical Updates Tagged With: Josiah, journey, Surgery, Update

June 2016 MRI

June 21, 2016 by Amy Tuley 16 Comments

June 2016 MRI

June 21, 2016 Josiah had a long day today. We left the house a little after 7:00 this morning for his neuropsychological testing and MRI.  The neuropsychological testing lasted about 2 hours. The neuropsychologist said he did great, and she will compile the results and we will meet with her again next month. Between her […]

Filed Under: MRI Tagged With: Botox, Josiah, MRI

The Nightmare

June 20, 2016 by Amy Tuley 8 Comments

The Nightmare

Have you ever had a nightmare? You know, the one where you wake up in a panicky sweat, short of breath, convincing yourself it was just a bad dream? Yeah, one of those. If you’re like me, you take some time to breathe and calm yourself down until you’re able to relax and settle back […]

Filed Under: Faith, Real & Honest Tagged With: faith, God, Honest, peace

Camp 2016

June 16, 2016 by Amy Tuley 2 Comments

Camp 2016

I sat outside and watched as 80 5th and 6th grade campers played around the beautiful campgrounds of Camp MOCOMI. The temperatures were in the 90s, but a breeze and shade surrounded me so I was not miserable. My husband was in Dallas, my children were scattered with other caregivers for the week, and even […]

Filed Under: God Tagged With: God, Perfect

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