Josiah’s MRI went really well! We didn’t get results right away since the MRI was later in the afternoon. They called this morning and told us everything still looks great! He’ll see the neurosurgeon Monday afternoon for his follow-up appointment. No Sedation! This was Josiah’s FIRST time to do the MRI while AWAKE! He didn’t […]
Nov 2017 – Jan 2018 Medical Update
MRI Josiah was scheduled to have an MRI in November. The morning of the MRI, Josiah woke up sick, so the appointment was cancelled. It has been rescheduled for next week, January 17th in the afternoon. Serial Casting Josiah did have some serial casting at the end of November. It went amazingly well! Josiah did […]
October 2017 Medical Update
Kindergarten Josiah’s been doing great in Kindergarten. He loves it and is learning lots! He’s even been going for a full day, although several times a week he’s asleep before we even leave the school parking lot! Most days we’re able to wake him when we get home. Other days, he sleeps until after supper. […]
Seeing the hand of God
I love that on different apps, we can see photos from “this day” in past years. I love getting to see my now 12, 10, 7, and 5 year old children as babies and toddlers and preschoolers. And this time of year, I see their back to school pictures, proof of how much they’ve grown […]
New Leg Brace
Josiah’s new brace Josiah picked up his new leg brace back in June. His appointment was at 10:00, where they tried the brace on him, made marks where the brace needed to be cut and trimmed. We then had about 4 hours of time to kill in Columbia before we could go back and have […]
June 2017 Botox Update
June 27th was botox day. Josiah’s right wrist and elbow had been getting pretty tight recently. The last time we did botox in February, it was focused more on his right calf muscle. He’s responded well to that, and is doing great with his new leg brace. (more on that in a later post!) We’re […]
May 2017 MRI
Here’s a quick MRI update from May 19th. I wrote this back in May, and realized I never did get around to posting it on the blog! Over the last month and a half (April/May), we noticed some symptoms with Josiah, which were a concern to me. We had him checked out with his primary […]
May 2017 Update
May 17, 2017 Preschool Graduation Last night, Josiah graduated from preschool. He is super excited to be a kindergartener! Graduation went wonderful, even with all the applause! I did have him wear his headphones, and they worked great. He was as happy as could be going up on stage to get his certificate, and then […]
February 2017 Medical Update
It’s been a busy month, medically speaking. February 1st – CP Clinic This is a clinic where Josiah sees a team of doctors and therapists. He saw Occupational, Physical & Speech therapists, a nutritionist, pediatrician, orthopedic surgeon, and his rehabilitation doctor. The therapies are all going well and we are going to continue with what […]
Navigating the World of Vision Impairment
A few days into the year, Josiah had an eye evaluation from a specialist from MO School for the Blind. I’m overwhelmed with all the information that’s been coming my way since then. We learned some interesting things about Josiah’s vision during the evaluation. In short, there were two main things we will be adding to […]