June 21, 2016 Josiah had a long day today. We left the house a little after 7:00 this morning for his neuropsychological testing and MRI. The neuropsychological testing lasted about 2 hours. The neuropsychologist said he did great, and she will compile the results and we will meet with her again next month. Between her […]
The Nightmare
Have you ever had a nightmare? You know, the one where you wake up in a panicky sweat, short of breath, convincing yourself it was just a bad dream? Yeah, one of those. If you’re like me, you take some time to breathe and calm yourself down until you’re able to relax and settle back […]
Camp 2016
I sat outside and watched as 80 5th and 6th grade campers played around the beautiful campgrounds of Camp MOCOMI. The temperatures were in the 90s, but a breeze and shade surrounded me so I was not miserable. My husband was in Dallas, my children were scattered with other caregivers for the week, and even […]
April/May 2016 Update
It’s been way too long since sitting down and writing! I realized over the weekend I hadn’t even updated about Josiah’s growth hormone testing. Although, some of that is because I don’t have much information to pass along! Josiah did have growth hormone testing in April, and he showed up at the hospital dressed as […]
Happy Easter
Because this contains a “Josiah” story, I wanted to be sure to share our latest Pioneer Bible Translators ministry newsletter on the blog as well! (For those of you who subscribe to both the blog and our ministry updates, we apologize for the double E-mails today, and want to let you know this will not be […]
March 2016 Medical Update (Botox)
Josiah had Botox last week and it went really well. We started the morning with going to the orthotic clinic to make a small fix on his brace. There is a house being built across the street from us, so when we got home, we stayed outside to watch the construction workers and machinery. Josiah […]
Haircuts, Shoes, Drums and Therapy
It’s been a great week, and we’ve all enjoyed being outside with the nicer weather! Haircuts. On Monday the kids all got haircuts. The girls just had their hair trimmed and the boys had quite a bit cut – especially Josiah! Here’s their before and after pics! Shoes. It took about a week, but we […]
Appointment Update
Josiah had his visit with the endocrinologist yesterday morning and it went really well. Here’s a quick re-cap of the appointment: We are able to do the lab work for his thyroid when we go in for the Botox appointment on March 22nd. One of his medications needed to be increased because he’s grown a little […]
New Shoes and Upcoming Appointments
Josiah has a new brace for his right let/foot, a new insert for his left foot, new shoes, and a new arm splint and hand splint. The arm and hand splints are very similar to what he’s had in the past, just bigger because he’s grown! Our appointment with the orthotist yesterday went really well. […]
January and February 2016 Medical Update
It’s been awhile since writing, and it’s been a good break for me. January was a nice break in our schedule, and we were home for most of the month. Due to health insurance changes, Josiah had to go through the pre-approval, evaluation and testing process again. Although I tried my best to stay on […]