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February 2022 MRI & Medical Update

February 24, 2022 by Amy Tuley 2 Comments

MRI Day: Today was Josiah’s MRI. The Children’s Cancer and Blood Disorder Unit has moved to the main hospital, creating a new experience for us today. The room made Josiah nervous at first, but he calmed down fairly quickly and soon was chatting it up with everyone. He let them put on numbing cream, and […]

Filed Under: Josiah's Journey, Medical Updates, MRI Tagged With: Josiah, MRI, Update

January 2020 Medical Update

January 31, 2020 by Amy Tuley 12 Comments

Josiah has a great team of doctors caring for him. He’s had a few appointments this year already, and more in the coming months, so I thought now would be a great time for a quick update! Things have been relatively quiet on the medical front these days, and we are extremely grateful! That’s not […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, journey, Progress

Quick July 2018 Update

July 20, 2018 by Amy Tuley Leave a Comment

Summertime! We’ve been having a great summer! We’ve visited Dallas with Nathan and his work with Pioneer Bible Translators (PBT), and the kids have stayed busy with church camp/activities, visiting grandparents, enjoying their two new kittens, and having time at home (probably being bored more than they’d like!) All in all, things have been great! […]

Filed Under: Family and Fun, Josiah's Journey, Medical Updates Tagged With: family, Josiah, Update

The Miracle, and a Quick Update

May 10, 2018 by Amy Tuley 5 Comments

The Miracle This boy. His MRI is coming up on May 23rd. If the results are good, he moves to yearly MRIs. I never thought we’d reach this point. It seemed so far away. One major brain surgery, vision loss, a stroke, seizures, 16 months of chemotherapy, several leg and arm braces, 4 different hormone […]

Filed Under: Faith, Josiah's Journey, Medical Updates, Real & Honest Tagged With: faith, God, Josiah, Update

Therapy, CP Clinic, and a New Leg Brace

February 11, 2018 by Amy Tuley Leave a Comment

The past two weeks have been very busy with appointments!  Josiah even got a much needed haircut! Therapy Evaluations First, Josiah had speech and OT therapy evaluations completed. He did great with these and really hit it off with the new therapists. During the month of February he will be doing Intensive Therapy.  Unfortunately, he’s […]

Filed Under: Josiah's Journey, Medical Updates, Therapy Tagged With: Josiah, journey, Progress, Therapy

Nov 2017 – Jan 2018 Medical Update

January 11, 2018 by Amy Tuley Leave a Comment

MRI Josiah was scheduled to have an MRI in November. The morning of the MRI, Josiah woke up sick, so the appointment was cancelled. It has been rescheduled for next week, January 17th in the afternoon. Serial Casting Josiah did have some serial casting at the end of November. It went amazingly well! Josiah did […]

Filed Under: Josiah's Journey, Medical Updates, Progress, Therapy Tagged With: Josiah, journey, Progress, Therapy, Update

October 2017 Medical Update

October 19, 2017 by Amy Tuley Leave a Comment

Kindergarten Josiah’s been doing great in Kindergarten. He loves it and is learning lots! He’s even been going for a full day, although several times a week he’s asleep before we even leave the school parking lot! Most days we’re able to wake him when we get home. Other days, he sleeps until after supper. […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, journey, Progress, Update

February 2017 Medical Update

February 18, 2017 by Amy Tuley 2 Comments

It’s been a busy month, medically speaking. February 1st – CP Clinic This is a clinic where Josiah sees a team of doctors and therapists. He saw Occupational, Physical & Speech therapists, a nutritionist, pediatrician, orthopedic surgeon, and his rehabilitation doctor. The therapies are all going well and we are going to continue with what […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, journey, Therapy, Update

October 2016 Medical Update

October 25, 2016 by Amy Tuley 8 Comments

Hello again! I’ve not completely given up on writing, it’s just not been my top priority lately. Between moving, getting settled, adjusting to the routine of our new middle schooler, additional therapies and preschool schedule, keeping up with homeschooling, along with the daily cooking, cleaning and laundry, it’s been a crazy few months. However, things […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, Therapy, Update

Growth Hormone Shots

August 23, 2016 by Amy Tuley 2 Comments

It’s been about six weeks since Josiah started his growth hormone shots. The Shot: We call Josiah’s growth hormone shot a “pen poke” because it’s not like a shot or vaccine you get at the doctors office. It’s actually a pen that automatically dispenses his dose for us. We put a new needle on the pen […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Josiah, journey

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