It’s been way too long since sitting down and writing! I realized over the weekend I hadn’t even updated about Josiah’s growth hormone testing. Although, some of that is because I don’t have much information to pass along! Josiah did have growth hormone testing in April, and he showed up at the hospital dressed as […]
March 2016 Medical Update (Botox)
Josiah had Botox last week and it went really well. We started the morning with going to the orthotic clinic to make a small fix on his brace. There is a house being built across the street from us, so when we got home, we stayed outside to watch the construction workers and machinery. Josiah […]
Appointment Update
Josiah had his visit with the endocrinologist yesterday morning and it went really well. Here’s a quick re-cap of the appointment: We are able to do the lab work for his thyroid when we go in for the Botox appointment on March 22nd. One of his medications needed to be increased because he’s grown a little […]
New Shoes and Upcoming Appointments
Josiah has a new brace for his right let/foot, a new insert for his left foot, new shoes, and a new arm splint and hand splint. The arm and hand splints are very similar to what he’s had in the past, just bigger because he’s grown! Our appointment with the orthotist yesterday went really well. […]
January and February 2016 Medical Update
It’s been awhile since writing, and it’s been a good break for me. January was a nice break in our schedule, and we were home for most of the month. Due to health insurance changes, Josiah had to go through the pre-approval, evaluation and testing process again. Although I tried my best to stay on […]
December 2015 Update
The year is almost over and we enjoyed spending time with family. Josiah’s MRI on December 2nd showed good results, and he doesn’t go back for an MRI until June. Josiah received Botox in his right arm and hand, which has been very helpful in loosening up the muscles, enabling better use of the arm. […]
Fun MRI Day Quotes
Josiah’s MRI results were clear/stable! Praise God! Josiah’s next MRI will be in June. Josiah was definitely in character yesterday so we thought it’d be fun to share a few of his quotes! To the Oncology Nurse Practitioner when she was chatting with him: “I wish I can be like you when I grow up”…She […]
MRI Preparation
Today as we were finalizing plans for tomorrow’s MRI, we told Josiah that he would be going to the hospital for a doctor appointment. He asked the question he always asks before an appointment – “Mommy, I’m not going to get a shot?” I explained that he wouldn’t be getting shots, but instead a needle in his […]
Faith Wins
It has been almost 6 months since Josiah’s last MRI! Wednesday, December 2, he goes back for another. I hate the anticipation. I hate the anxiety that creeps up during the weeks prior. I hate the constant stream of dreams that fill the nights, starting about two weeks before. I hate the feeling of be