I don’t want to cheat you readers by simply offering a giveaway (open until October 31st!) and a chance to ask questions, so here’s some blog content as well! I’ve written much about Josiah’s diagnosis and month long stay in the hospital, but haven’t really gotten into the 16 months of chemotherapy. Here’s a quick overview of […]
Beads of Courage
About a month into Josiah’s chemotherapy, one of the nurses asked if we had been getting beads for Josiah. I wasn’t sure what she was talking about, so the child life specialist came in with some beads and explained the Beads of Courage program to us. “The Beads of Courage program is a unique program […]
Your Embrace
This man. I love him so much and am super crazy proud to call him my husband! Nathan is an amazing man of God and has been an amazing source of support for me. I love his perspective of this day, the Sunday before Josiah’s surgery. He processed and wrote these thoughts that very evening. […]
Overwhelmed
This is the second of Nathan’s posts following Josiah’s diagnosis. He wrote this two days after the MRI. We were certainly overwhelmed. But yet, there was peace. Peace that transcends all understanding. Overwhelmed September 29, 2012 Do you have a list…a list of questions you want to ask God when you get to heaven? I […]
Surgery Day
Three years ago today we were at the hospital at 6:30am preparing for Josiah’s brain surgery. As I was looking back at the caringbridge posts from three years ago today, I am so glad I journaled through the process. There are so many little details I don’t recall. I found this statement very interesting: “He wasn’t interested […]
A Quick History
Write31Days: My Granny always said I was going to college to get my M.R.S. Degree. While I graduated with a teaching degree in 2004, I did, in fact earn the M.R.S. Degree when I married Nathan. I became Mrs. Tuley in May of 2002. Granny was able to witness that before her passing three months […]
Reflections: Then & Now and everything in between
Write31Days I am so excited to take the challenge of writing for 31 days! I had this goal set last year when I went to the Declare Conference, but haven’t made the time to do so. I heard about this challenge after attending the Declare Conference again in August and decided that now is the […]
July 2015 Medical Update
Tonight as we sat in the living room before bed, Nathan started giving us some riddles to solve. The kids absolutely loved it! I was impressed with how many they figured out on their own. Ruth Ann had a grand old time shouting out random answers and Josiah enjoyed building with his magnet blocks and […]
Botox Progress # 2
It has been four months since Josiah’s Botox shots in his arm and hand. We noticed a big difference soon after, as he started wearing his arm/hand splints and brace, and was tolerating therapy a lot better. In that four months Josiah has made a ton of progress! He consistently uses his right hand to […]
Shoe Shopping
For anyone who knows me well, I am not a fan of shoe shopping. Well, the experience has worsened! On May 19th, we picked up Josiah’s new AFO brace. (AFO = ankle-foot-orthotic) You’ve just learned a new medical term – welcome to my world! This is Josiah’s third brace, but the first two were fairly small and […]