Adventures with the Tuleys!

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What now?

November 3, 2015 by Amy Tuley Leave a Comment

I want to say a big THANK YOU to everyone who has followed along with me over the past 31 days! It’s been a wonderful journey, and I’ve really enjoyed it. It has been so good for me to reflect on the last three years over this past month. It has also provided a place […]

Filed Under: Write 31 Days

God’s Peace

November 2, 2015 by Amy Tuley Leave a Comment

A friend of mine recently asked me, “Did you ever, even for a second, think that Josiah might not make it? And if so, how did you overcome that?” I am so glad she asked this question. The easy answer is, “yes, I did” and “I overcame that with God’s peace.” I know you’re looking […]

Filed Under: God, Real & Honest, Write 31 Days Tagged With: God, Honest, peace, Write31Days

MU Healthcare

November 1, 2015 by Amy Tuley Leave a Comment

If you didn’t know, I’m a last minute planner, and it drives my Type-A first born daughter ridiculously crazy. Anyway, I wasn’t real worried about planning for Halloween, as we always come up with costumes, and the creativity that comes with last minute planning is kinda fun. (most of the time. Sometimes it’s stressful…) It’s also resourceful! […]

Filed Under: Write 31 Days Tagged With: DAISY Award, Write31Days

Halloween

October 31, 2015 by Amy Tuley Leave a Comment

Happy Halloween! Three years ago we were blessed to be home and able to get our kids dressed up and go trick-or-treating with them. Here’s a picture of our tiger, ninja turtle, wolf, and football player. Two years ago we had a frog, tiger, pop star, and ninja. Last year we had a pioneer girl, […]

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HOME!

October 30, 2015 by Amy Tuley Leave a Comment

Three years ago today we were FINALLY discharged from the hospital following Josiah’s brain surgery. 28 days of unexpected hospital living were done! Here’s an excerpt from my journal of that day, and the excitement surrounding our arrival home. When we got home, we rang the doorbell for the kids to answer. They bombarded the […]

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Master of Distraction

October 29, 2015 by Amy Tuley Leave a Comment

October 28, 2012 we finally moved out of the Pediatric Intensive Care Unit and into the regular pediatric floor! October 28, 2015 Josiah is home, sticking carrots up his nose. He doesn’t usually smile like this for pictures… When Josiah had his surgery, doctors weren’t sure how the tumor and stroke had affected his brain. We […]

Filed Under: Quotes, Write 31 Days Tagged With: Therapy, Write31Days

Everyday Struggles – Part 4

October 28, 2015 by Amy Tuley 4 Comments

Going out to eat at restaurants is sometimes a challenge with Josiah. It’s definitely getting better, although when we do go out, it’s usually fast food (Chic-Fil-A where he can play or the drive through) or HyVee where we can leave and get groceries when Josiah’s done with sitting at the table. Going to a […]

Filed Under: Real & Honest, Write 31 Days Tagged With: Honest, Write31Days

Everyday Struggles – Part 3

October 27, 2015 by Amy Tuley Leave a Comment

Why church was hard: Following Josiah’s surgery, he fell back into somewhat of a newborn’s sleep pattern. If he was overstimulated (which was often) all we had to do was take him to his dark room (ok. It was our master closet-completely dark and very quiet as it’s away from the rest of the house.), […]

Filed Under: Real & Honest, Write 31 Days Tagged With: Honest, Write31Days

Everyday Struggles – Part 2

October 26, 2015 by Amy Tuley Leave a Comment

In my first Everyday Struggles post, I mentioned that Mondays (chemo days) were the easy ones. I also shared that Tuesdays were another story. Chemo days were on Monday, and our normal time to be home was anywhere from 8-10pm. Josiah had never slept the best, but Monday nights seemed to be worse. He needed […]

Filed Under: Chemotherapy, God, Real & Honest, Write 31 Days Tagged With: God, Honest, Write31Days

Much Needed Break

October 24, 2015 by Amy Tuley Leave a Comment

It’s now October 25th, and you may have noticed (or not) that I’ve skipped the last two days of blogging. I’m still going to have 31 posts – just not consecutive and all in the month of October. Allow me to explain. Wednesday night, Nathan, the kids and I headed down to Branson to spend […]

Filed Under: Family and Fun, Write 31 Days

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