The Miracle This boy. His MRI is coming up on May 23rd. If the results are good, he moves to yearly MRIs. I never thought we'd reach this point. It seemed so far away. One major brain surgery, vision loss, a stroke, seizures, 16 months of … [Read more]
Intensive Therapy – Feb. 2018
Intensive Therapy During the month of February, Josiah took a month off of school to focus on Physical (PT), Occupational (OT) and Speech therapies. Over the course of four weeks, Josiah had 3 hours of PT 5x/week, 2 hours of OT 3x/week and 1 hour … [Read more]
Therapy, CP Clinic, and a New Leg Brace
The past two weeks have been very busy with appointments! Josiah even got a much needed haircut!Therapy Evaluations First, Josiah had speech and OT therapy evaluations completed. He did great with these and really hit it off with the new … [Read more]
January 2018 MRI
Josiah's MRI went really well! We didn't get results right away since the MRI was later in the afternoon. They called this morning and told us everything still looks great! He'll see the neurosurgeon Monday afternoon for his follow-up … [Read more]
Nov 2017 – Jan 2018 Medical Update
MRI Josiah was scheduled to have an MRI in November. The morning of the MRI, Josiah woke up sick, so the appointment was cancelled. It has been rescheduled for next week, January 17th in the afternoon. Serial Casting Josiah did have some serial … [Read more]
October 2017 Medical Update
Kindergarten Josiah's been doing great in Kindergarten. He loves it and is learning lots! He's even been going for a full day, although several times a week he's asleep before we even leave the school parking lot! Most days we're able to wake him … [Read more]
Seeing the hand of God
I love that on different apps, we can see photos from “this day” in past years. I love getting to see my now 12, 10, 7, and 5 year old children as babies and toddlers and preschoolers. And this time of year, I see their back to school pictures, proof … [Read more]
New Leg Brace
Josiah's new brace Josiah picked up his new leg brace back in June. His appointment was at 10:00, where they tried the brace on him, made marks where the brace needed to be cut and trimmed. We then had about 4 hours of time to kill in Columbia … [Read more]
June 2017 Botox Update
June 27th was botox day. Josiah's right wrist and elbow had been getting pretty tight recently. The last time we did botox in February, it was focused more on his right calf muscle. He's responded well to that, and is doing great with his new leg … [Read more]
May 2017 MRI
Here's a quick MRI update from May 19th. I wrote this back in May, and realized I never did get around to posting it on the blog!Over the last month and a half (April/May), we noticed some symptoms with Josiah, which were a concern to me. We had … [Read more]