Josiah had Botox last week and it went really well. We started the morning with going to the orthotic clinic to make a small fix on his brace. There is a house being built across the street from us, so when we got home, we stayed outside to watch the … [Read more]
Haircuts, Shoes, Drums and Therapy
It's been a great week, and we've all enjoyed being outside with the nicer weather!Haircuts. On Monday the kids all got haircuts. The girls just had their hair trimmed and the boys had quite a bit cut – especially Josiah! Here's their before and … [Read more]
Appointment Update
Josiah had his visit with the endocrinologist yesterday morning and it went really well. Here's a quick re-cap of the appointment:We are able to do the lab work for his thyroid when we go in for the Botox appointment on March 22nd. One of his … [Read more]
New Shoes and Upcoming Appointments
Josiah has a new brace for his right let/foot, a new insert for his left foot, new shoes, and a new arm splint and hand splint. The arm and hand splints are very similar to what he's had in the past, just bigger because he's grown!Our appointment … [Read more]
January and February 2016 Medical Update
It's been awhile since writing, and it's been a good break for me. January was a nice break in our schedule, and we were home for most of the month. Due to health insurance changes, Josiah had to go through the pre-approval, evaluation and testing … [Read more]
Even If Not
Even if not.Those words have resonated with me from the day I heard them.Many people have asked about the quotes and pictures I've been sharing on facebook about Kaitlyn Bouchillon's book, Even if Not. A few have even asked if I wrote this … [Read more]
December 2015 Update
The year is almost over and we enjoyed spending time with family. Josiah's MRI on December 2nd showed good results, and he doesn't go back for an MRI until June. Josiah received Botox in his right arm and hand, which has been very helpful in … [Read more]
Fun MRI Day Quotes
Josiah's MRI results were clear/stable! Praise God! Josiah's next MRI will be in June. Josiah was definitely in character yesterday so we thought it'd be fun to share a few of his quotes!To the Oncology Nurse Practitioner when she was chatting … [Read more]
MRI Preparation
Today as we were finalizing plans for tomorrow's MRI, we told Josiah that he would be going to the hospital for a doctor appointment. He asked the question he always asks before an appointment - “Mommy, I'm not going to get a shot?”I explained … [Read more]
Faith Wins
It has been almost 6 months since Josiah's last MRI! Wednesday, December 2, he goes back for another.I hate the anticipation. I hate the anxiety that creeps up during the weeks prior. I hate the constant stream of dreams that fill the nights, … [Read more]