Adventures with the Tuleys!

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January 2020 Medical Update

January 31, 2020 by Amy Tuley 12 Comments

Josiah has a great team of doctors caring for him. He’s had a few appointments this year already, and more in the coming months, so I thought now would be a great time for a quick update! Things have been relatively quiet on the medical front these days, and we are extremely grateful! That’s not […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, journey, Progress

Botox update – Sept 2018

September 4, 2018 by Amy Tuley 1 Comment

First off, thank you to everyone for all your prayers! Josiah did absolutely amazing getting the iv in his arm! There was no nervousness, tears, or stress involved, and that’s a rare thing, especially when getting botox. His doctor was shocked when she came into the room and the iv was already in – he […]

Filed Under: Josiah's Journey Tagged With: Botox, Josiah

October 2017 Medical Update

October 19, 2017 by Amy Tuley Leave a Comment

Kindergarten Josiah’s been doing great in Kindergarten. He loves it and is learning lots! He’s even been going for a full day, although several times a week he’s asleep before we even leave the school parking lot! Most days we’re able to wake him when we get home. Other days, he sleeps until after supper. […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, journey, Progress, Update

June 2017 Botox Update

July 11, 2017 by Amy Tuley 2 Comments

June 27th was botox day. Josiah’s right wrist and elbow had been getting pretty tight recently. The last time we did botox in February, it was focused more on his right calf muscle. He’s responded well to that, and is doing great with his new leg brace. (more on that in a later post!) We’re […]

Filed Under: Josiah's Journey Tagged With: Botox, Josiah

February 2017 Medical Update

February 18, 2017 by Amy Tuley 2 Comments

It’s been a busy month, medically speaking. February 1st – CP Clinic This is a clinic where Josiah sees a team of doctors and therapists. He saw Occupational, Physical & Speech therapists, a nutritionist, pediatrician, orthopedic surgeon, and his rehabilitation doctor. The therapies are all going well and we are going to continue with what […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, journey, Therapy, Update

October 2016 Medical Update

October 25, 2016 by Amy Tuley 8 Comments

Hello again! I’ve not completely given up on writing, it’s just not been my top priority lately. Between moving, getting settled, adjusting to the routine of our new middle schooler, additional therapies and preschool schedule, keeping up with homeschooling, along with the daily cooking, cleaning and laundry, it’s been a crazy few months. However, things […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, Therapy, Update

June 2016 MRI

June 21, 2016 by Amy Tuley 16 Comments

June 21, 2016 Josiah had a long day today. We left the house a little after 7:00 this morning for his neuropsychological testing and MRI.  The neuropsychological testing lasted about 2 hours. The neuropsychologist said he did great, and she will compile the results and we will meet with her again next month. Between her […]

Filed Under: MRI Tagged With: Botox, Josiah, MRI

March 2016 Medical Update (Botox)

March 29, 2016 by Amy Tuley 2 Comments

Josiah had Botox last week and it went really well. We started the morning with going to the orthotic clinic to make a small fix on his brace. There is a house being built across the street from us, so when we got home, we stayed outside to watch the construction workers and machinery. Josiah […]

Filed Under: Medical Updates Tagged With: Botox, Josiah, Update

New Shoes and Upcoming Appointments

March 9, 2016 by Amy Tuley 4 Comments

Josiah has a new brace for his right let/foot, a new insert for his left foot, new shoes, and a new arm splint and hand splint. The arm and hand splints are very similar to what he’s had in the past, just bigger because he’s grown! Our appointment with the orthotist yesterday went really well. […]

Filed Under: Josiah's Journey, Medical Updates, Progress Tagged With: Botox, Josiah, Therapy, Update

December 2015 Update

January 2, 2016 by Amy Tuley Leave a Comment

The year is almost over and we enjoyed spending time with family. Josiah’s MRI on December 2nd showed good results, and he doesn’t go back for an MRI until June. Josiah received Botox in his right arm and hand, which has been very helpful in loosening up the muscles, enabling better use of the arm. […]

Filed Under: Medical Updates, Progress, Quotes Tagged With: Botox, family, Josiah, journey, Progress, Therapy

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reflections

Last 5 Posts

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