First off, thank you to everyone for all your prayers! Josiah did absolutely amazing getting the iv in his arm! There was no nervousness, tears, or stress involved, and that’s a rare thing, especially when getting botox. His doctor was shocked when she came into the room and the iv was already in – he […]
Quick July 2018 Update
Summertime! We’ve been having a great summer! We’ve visited Dallas with Nathan and his work with Pioneer Bible Translators (PBT), and the kids have stayed busy with church camp/activities, visiting grandparents, enjoying their two new kittens, and having time at home (probably being bored more than they’d like!) All in all, things have been great! […]
The Miracle, and a Quick Update
The Miracle This boy. His MRI is coming up on May 23rd. If the results are good, he moves to yearly MRIs. I never thought we’d reach this point. It seemed so far away. One major brain surgery, vision loss, a stroke, seizures, 16 months of chemotherapy, several leg and arm braces, 4 different hormone […]
Therapy, CP Clinic, and a New Leg Brace
The past two weeks have been very busy with appointments! Josiah even got a much needed haircut! Therapy Evaluations First, Josiah had speech and OT therapy evaluations completed. He did great with these and really hit it off with the new therapists. During the month of February he will be doing Intensive Therapy. Unfortunately, he’s […]
January 2018 MRI
Josiah’s MRI went really well! We didn’t get results right away since the MRI was later in the afternoon. They called this morning and told us everything still looks great! He’ll see the neurosurgeon Monday afternoon for his follow-up appointment. No Sedation! This was Josiah’s FIRST time to do the MRI while AWAKE! He didn’t […]
Nov 2017 – Jan 2018 Medical Update
MRI Josiah was scheduled to have an MRI in November. The morning of the MRI, Josiah woke up sick, so the appointment was cancelled. It has been rescheduled for next week, January 17th in the afternoon. Serial Casting Josiah did have some serial casting at the end of November. It went amazingly well! Josiah did […]
October 2017 Medical Update
Kindergarten Josiah’s been doing great in Kindergarten. He loves it and is learning lots! He’s even been going for a full day, although several times a week he’s asleep before we even leave the school parking lot! Most days we’re able to wake him when we get home. Other days, he sleeps until after supper. […]
Seeing the hand of God
I love that on different apps, we can see photos from “this day” in past years. I love getting to see my now 12, 10, 7, and 5 year old children as babies and toddlers and preschoolers. And this time of year, I see their back to school pictures, proof of how much they’ve grown […]
New Leg Brace
Josiah’s new brace Josiah picked up his new leg brace back in June. His appointment was at 10:00, where they tried the brace on him, made marks where the brace needed to be cut and trimmed. We then had about 4 hours of time to kill in Columbia before we could go back and have […]
June 2017 Botox Update
June 27th was botox day. Josiah’s right wrist and elbow had been getting pretty tight recently. The last time we did botox in February, it was focused more on his right calf muscle. He’s responded well to that, and is doing great with his new leg brace. (more on that in a later post!) We’re […]