Adventures with the Tuleys!

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January 2020 Medical Update

January 31, 2020 by Amy Tuley 12 Comments

Josiah has a great team of doctors caring for him. He’s had a few appointments this year already, and more in the coming months, so I thought now would be a great time for a quick update! Things have been relatively quiet on the medical front these days, and we are extremely grateful! That’s not […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, journey, Progress

Therapy, CP Clinic, and a New Leg Brace

February 11, 2018 by Amy Tuley Leave a Comment

The past two weeks have been very busy with appointments!  Josiah even got a much needed haircut! Therapy Evaluations First, Josiah had speech and OT therapy evaluations completed. He did great with these and really hit it off with the new therapists. During the month of February he will be doing Intensive Therapy.  Unfortunately, he’s […]

Filed Under: Josiah's Journey, Medical Updates, Therapy Tagged With: Josiah, journey, Progress, Therapy

Nov 2017 – Jan 2018 Medical Update

January 11, 2018 by Amy Tuley Leave a Comment

MRI Josiah was scheduled to have an MRI in November. The morning of the MRI, Josiah woke up sick, so the appointment was cancelled. It has been rescheduled for next week, January 17th in the afternoon. Serial Casting Josiah did have some serial casting at the end of November. It went amazingly well! Josiah did […]

Filed Under: Josiah's Journey, Medical Updates, Progress, Therapy Tagged With: Josiah, journey, Progress, Therapy, Update

October 2017 Medical Update

October 19, 2017 by Amy Tuley Leave a Comment

Kindergarten Josiah’s been doing great in Kindergarten. He loves it and is learning lots! He’s even been going for a full day, although several times a week he’s asleep before we even leave the school parking lot! Most days we’re able to wake him when we get home. Other days, he sleeps until after supper. […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, journey, Progress, Update

May 2017 MRI

July 7, 2017 by Amy Tuley 7 Comments

Here’s a quick MRI update from May 19th. I wrote this back in May, and realized I never did get around to posting it on the blog! Over the last month and a half (April/May), we noticed some symptoms with Josiah, which were a concern to me. We had him checked out with his primary […]

Filed Under: Josiah's Journey, MRI Tagged With: Josiah, journey, kids, MRI

May 2017 Update

May 17, 2017 by Amy Tuley 3 Comments

May 17, 2017 Preschool Graduation Last night, Josiah graduated from preschool. He is super excited to be a kindergartener! Graduation went wonderful, even with all the applause! I did have him wear his headphones, and they worked great. He was as happy as could be going up on stage to get his certificate, and then […]

Filed Under: Josiah's Journey Tagged With: braille, Josiah, journey, Photos, Progress, School

February 2017 Medical Update

February 18, 2017 by Amy Tuley 2 Comments

It’s been a busy month, medically speaking. February 1st – CP Clinic This is a clinic where Josiah sees a team of doctors and therapists. He saw Occupational, Physical & Speech therapists, a nutritionist, pediatrician, orthopedic surgeon, and his rehabilitation doctor. The therapies are all going well and we are going to continue with what […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, journey, Therapy, Update

December 2016 MRI

December 8, 2016 by Amy Tuley Leave a Comment

December 8, 2016 Josiah and I were up at 4:30 yesterday to make granola bars for breakfast. He wasn’t able to eat or drink after 6, but since he woke up extra early, I took advantage of getting him some food and drink while he still could! We dropped Grace off at school and the […]

Filed Under: Josiah's Journey, MRI Tagged With: Josiah, journey, MRI

Growth Hormone Shots

August 23, 2016 by Amy Tuley 2 Comments

It’s been about six weeks since Josiah started his growth hormone shots. The Shot: We call Josiah’s growth hormone shot a “pen poke” because it’s not like a shot or vaccine you get at the doctors office. It’s actually a pen that automatically dispenses his dose for us. We put a new needle on the pen […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Josiah, journey

More Appointments

June 25, 2016 by Amy Tuley 4 Comments

Well this was a long week filled with appointments! Here’s a quick rundown from our week: Monday – 2 hour interview with neuropsychologist. (Mostly Nathan and I visiting with the Dr.) Tuesday – 2 hour testing with neuropsychologist (Josiah was tested while Nathan and I waited in the waiting room.) We will discuss the results July […]

Filed Under: Medical Updates Tagged With: Josiah, journey, Surgery, Update

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