In October’s post, I mentioned something we were super excited about, but couldn’t yet share. Today’s the day!!! Backstory: During Josiah’s intensive therapy, he worked on putting on and zipping up a coat. While for most of us, this isn’t a difficult task, doing so with one hand is quite challenging. Combined with Josiah’s vision […]
Navigating the World of Vision Impairment
A few days into the year, Josiah had an eye evaluation from a specialist from MO School for the Blind. I’m overwhelmed with all the information that’s been coming my way since then. We learned some interesting things about Josiah’s vision during the evaluation. In short, there were two main things we will be adding to […]
Faith Wins
It has been almost 6 months since Josiah’s last MRI! Wednesday, December 2, he goes back for another. I hate the anticipation. I hate the anxiety that creeps up during the weeks prior. I hate the constant stream of dreams that fill the nights, starting about two weeks before. I hate the feeling of being […]
Overwhelmed
This is the second of Nathan’s posts following Josiah’s diagnosis. He wrote this two days after the MRI. We were certainly overwhelmed. But yet, there was peace. Peace that transcends all understanding. Overwhelmed September 29, 2012 Do you have a list…a list of questions you want to ask God when you get to heaven? I […]
Surgery Day
Three years ago today we were at the hospital at 6:30am preparing for Josiah’s brain surgery. As I was looking back at the caringbridge posts from three years ago today, I am so glad I journaled through the process. There are so many little details I don’t recall. I found this statement very interesting: “He wasn’t interested […]
Shoe Shopping
For anyone who knows me well, I am not a fan of shoe shopping. Well, the experience has worsened! On May 19th, we picked up Josiah’s new AFO brace. (AFO = ankle-foot-orthotic) You’ve just learned a new medical term – welcome to my world! This is Josiah’s third brace, but the first two were fairly small and […]
Baskets of Blessings
I came home this afternoon to a house-full of laundry. I decided I’d start with the two baskets that were OVERFLOWING with towels. As I loaded up the washing machine, only half emptying one basket before the machine was full, I couldn’t help but smile. All these towels meant that we had a full house […]