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February 2022 MRI & Medical Update

February 24, 2022 by Amy Tuley 2 Comments

MRI Day: Today was Josiah’s MRI. The Children’s Cancer and Blood Disorder Unit has moved to the main hospital, creating a new experience for us today. The room made Josiah nervous at first, but he calmed down fairly quickly and soon was chatting it up with everyone. He let them put on numbing cream, and […]

Filed Under: Josiah's Journey, Medical Updates, MRI Tagged With: Josiah, MRI, Update

June 2021 Update

July 1, 2021 by Amy Tuley Leave a Comment

Kids and Family Update: We have all been enjoying the summer. Between the six of us, we seem to have filled it up! Kansas for wilderness camp, Branson with my parents, Texas with Pioneer Bible Translators, camps, and intensive therapy. The kids have enjoyed church camp, Ruth Ann attended drama camp, and they’re all looking […]

Filed Under: Josiah's Journey Tagged With: family, Josiah, Update

Quick July 2018 Update

July 20, 2018 by Amy Tuley Leave a Comment

Summertime! We’ve been having a great summer! We’ve visited Dallas with Nathan and his work with Pioneer Bible Translators (PBT), and the kids have stayed busy with church camp/activities, visiting grandparents, enjoying their two new kittens, and having time at home (probably being bored more than they’d like!) All in all, things have been great! […]

Filed Under: Family and Fun, Josiah's Journey, Medical Updates Tagged With: family, Josiah, Update

The Miracle, and a Quick Update

May 10, 2018 by Amy Tuley 5 Comments

The Miracle This boy. His MRI is coming up on May 23rd. If the results are good, he moves to yearly MRIs. I never thought we’d reach this point. It seemed so far away. One major brain surgery, vision loss, a stroke, seizures, 16 months of chemotherapy, several leg and arm braces, 4 different hormone […]

Filed Under: Faith, Josiah's Journey, Medical Updates, Real & Honest Tagged With: faith, God, Josiah, Update

Nov 2017 – Jan 2018 Medical Update

January 11, 2018 by Amy Tuley Leave a Comment

MRI Josiah was scheduled to have an MRI in November. The morning of the MRI, Josiah woke up sick, so the appointment was cancelled. It has been rescheduled for next week, January 17th in the afternoon. Serial Casting Josiah did have some serial casting at the end of November. It went amazingly well! Josiah did […]

Filed Under: Josiah's Journey, Medical Updates, Progress, Therapy Tagged With: Josiah, journey, Progress, Therapy, Update

October 2017 Medical Update

October 19, 2017 by Amy Tuley Leave a Comment

Kindergarten Josiah’s been doing great in Kindergarten. He loves it and is learning lots! He’s even been going for a full day, although several times a week he’s asleep before we even leave the school parking lot! Most days we’re able to wake him when we get home. Other days, he sleeps until after supper. […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, journey, Progress, Update

February 2017 Medical Update

February 18, 2017 by Amy Tuley 2 Comments

It’s been a busy month, medically speaking. February 1st – CP Clinic This is a clinic where Josiah sees a team of doctors and therapists. He saw Occupational, Physical & Speech therapists, a nutritionist, pediatrician, orthopedic surgeon, and his rehabilitation doctor. The therapies are all going well and we are going to continue with what […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, journey, Therapy, Update

Navigating the World of Vision Impairment

January 23, 2017 by Amy Tuley 18 Comments

A few days into the year, Josiah had an eye evaluation from a specialist from MO School for the Blind. I’m overwhelmed with all the information that’s been coming my way since then. We learned some interesting things about Josiah’s vision during the evaluation. In short, there were two main things we will be adding to […]

Filed Under: Braille, Josiah's Journey, Next Steps Tagged With: Josiah, overwhelmed, Update

October 2016 Medical Update

October 25, 2016 by Amy Tuley 8 Comments

Hello again! I’ve not completely given up on writing, it’s just not been my top priority lately. Between moving, getting settled, adjusting to the routine of our new middle schooler, additional therapies and preschool schedule, keeping up with homeschooling, along with the daily cooking, cleaning and laundry, it’s been a crazy few months. However, things […]

Filed Under: Josiah's Journey, Medical Updates Tagged With: Botox, Josiah, Therapy, Update

Quick update July 2016

August 5, 2016 by Amy Tuley 2 Comments

Wow you guys! So much has happened since I last updated at the end of June. I’ll sum it up for now, and hopefully give more details in posts to come. (You know, in all that free time I seem to have!) 🙂 Last week of June: During the last week of June, Samuel was […]

Filed Under: Family and Fun Tagged With: Declare, family, Update

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Last 5 Posts

  • February 2022 MRI & Medical Update
  • June 2021 Update
  • February 2021 MRI
  • MRI Time Again!
  • Quarantine – Pre/Day1/Day2

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