MRI Day: Today was Josiah’s MRI. The Children’s Cancer and Blood Disorder Unit has moved to the main hospital, creating a new experience for us today. The room made Josiah nervous at first, but he calmed down fairly quickly and soon was chatting it up with everyone. He let them put on numbing cream, and […]
June 2021 Update
Kids and Family Update: We have all been enjoying the summer. Between the six of us, we seem to have filled it up! Kansas for wilderness camp, Branson with my parents, Texas with Pioneer Bible Translators, camps, and intensive therapy. The kids have enjoyed church camp, Ruth Ann attended drama camp, and they’re all looking […]
Quick July 2018 Update
Summertime! We’ve been having a great summer! We’ve visited Dallas with Nathan and his work with Pioneer Bible Translators (PBT), and the kids have stayed busy with church camp/activities, visiting grandparents, enjoying their two new kittens, and having time at home (probably being bored more than they’d like!) All in all, things have been great! […]
The Miracle, and a Quick Update
The Miracle This boy. His MRI is coming up on May 23rd. If the results are good, he moves to yearly MRIs. I never thought we’d reach this point. It seemed so far away. One major brain surgery, vision loss, a stroke, seizures, 16 months of chemotherapy, several leg and arm braces, 4 different hormone […]
Nov 2017 – Jan 2018 Medical Update
MRI Josiah was scheduled to have an MRI in November. The morning of the MRI, Josiah woke up sick, so the appointment was cancelled. It has been rescheduled for next week, January 17th in the afternoon. Serial Casting Josiah did have some serial casting at the end of November. It went amazingly well! Josiah did […]
October 2017 Medical Update
Kindergarten Josiah’s been doing great in Kindergarten. He loves it and is learning lots! He’s even been going for a full day, although several times a week he’s asleep before we even leave the school parking lot! Most days we’re able to wake him when we get home. Other days, he sleeps until after supper. […]
February 2017 Medical Update
It’s been a busy month, medically speaking. February 1st – CP Clinic This is a clinic where Josiah sees a team of doctors and therapists. He saw Occupational, Physical & Speech therapists, a nutritionist, pediatrician, orthopedic surgeon, and his rehabilitation doctor. The therapies are all going well and we are going to continue with what […]
Navigating the World of Vision Impairment
A few days into the year, Josiah had an eye evaluation from a specialist from MO School for the Blind. I’m overwhelmed with all the information that’s been coming my way since then. We learned some interesting things about Josiah’s vision during the evaluation. In short, there were two main things we will be adding to […]
October 2016 Medical Update
Hello again! I’ve not completely given up on writing, it’s just not been my top priority lately. Between moving, getting settled, adjusting to the routine of our new middle schooler, additional therapies and preschool schedule,