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Quick Medical Update – Feb 2019

February 20, 2019 by Amy Tuley 20 Comments

It has been great that there’s not a lot to update about these days! I looked and the last time I updated our blog was in November! We enjoyed Thanksgiving and Christmas with family, had several bouts of sickness running through our house, plenty of snow, and to be honest, we’re all just ready for spring and sunshine!

Unfortunately, this update kinda matches the grey, cold weather we’ve been having, and not the spring-feeling cheeriness that’s much more fun to write about! But, it’s not terrible news either – we’ve just moved up the MRI due to some recent concerns that can only be answered by doing a scan.

Over the past few months, Josiah has been having some headaches. We’ve visited with his primary physician, endocrinologist, and oncologist. He was referred to neurology for migraines in January. Most of his headaches were also around times of sickness, and only occurred once or twice a month, so we had just been monitoring.

At his neurology appointment, we were given instructions on how to treat any headaches that came along, and they haven’t been as painful for him, which has been nice. If he were to have four headaches in four weeks time, we were to contact neurology. In the last four weeks, he had five headaches – some likely due to having strep.

Because of this, his annual MRI has been moved up to next Wednesday, Feb 27th at 6:00pm. It was originally scheduled for May. This was our first year to move from scans every six months to yearly scans. We made it to 9 months at least!

There’s several possibilities causing his headaches – the first concern for us is tumor growth. Oncology has been encouraging, and while it is a possibility, the likelihood is not high since he’s been stable for almost 5 years.

Another possibility is due to his hormone replacement, specifically growth hormone. He’s not exhibiting the kinds of headaches he would have with that, which is encouraging. We’re working closely with his endocrinologist as well.

Sinus headaches and pressure is likely and being considered. The pain he shows is in the sinus areas. The MRI will show if sinus problems are present.

Finally, he could just be having migraines. The MRI will eliminate the other concerns, and then we can focus on what is triggering these and working to treat them.

We will not have the results right away, but will update as we find out more. Thank you, for always loving on and praying for our family. We appreciate and thank God for each and every one of you.

UPDATE: The MRI was good and he’s not been having headaches as often and is doing great! 

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Comments

  1. Debbie Denham says

    February 21, 2019 at 8:51 am

    Prayers for great results for this special little guy tell him hello and a hug from me Karen’s friend Debbie

    Reply
    • Connie schwada says

      February 22, 2019 at 10:14 am

      In our prayers.

      Reply
      • Amy Tuley says

        February 25, 2019 at 12:52 pm

        Thank you, Debbie! Will do!

        Reply
      • Amy Tuley says

        February 25, 2019 at 12:52 pm

        Thank you, Connie.

        Reply
  2. Aunt Nancy says

    February 21, 2019 at 11:20 am

    Prayers for answers and healing from headaches for Josiah. Love you all!

    Reply
    • Amy Tuley says

      February 25, 2019 at 12:52 pm

      Thanks Aunt Nancy! Love you too!

      Reply
  3. Vicki Brumley says

    February 21, 2019 at 6:56 pm

    Praying for healing for Josiah..

    Reply
    • Amy Tuley says

      February 25, 2019 at 12:53 pm

      Thank you Vicki!

      Reply
  4. David and Lora Hall says

    February 21, 2019 at 9:37 pm

    Prayers for our little buddy.

    Reply
    • Amy Tuley says

      February 25, 2019 at 12:53 pm

      Thanks neighbors!

      Reply
  5. Jamie King says

    February 22, 2019 at 9:55 am

    We are lifting you guys in our prayers! We are here if you need anything!

    Reply
    • Amy Tuley says

      February 25, 2019 at 12:53 pm

      Thank you, Jamie, we appreciate it!

      Reply
  6. Christina Nelson says

    February 22, 2019 at 10:20 am

    We will keep you in our prayers for good results and answers to all concerns. Nut above all, healing, comfort and strength.

    Reply
    • Amy Tuley says

      February 25, 2019 at 12:53 pm

      Thank you, Christina!

      Reply
  7. Tami Huffman says

    February 23, 2019 at 12:52 am

    Praying for Josiah, your family, the doctors, and good results from the scan. Love you

    Reply
    • Amy Tuley says

      February 25, 2019 at 12:54 pm

      Thank you, Tami!

      Reply
  8. Cherie’ Hodgen says

    February 25, 2019 at 9:02 am

    Praying from a Mama’s heart.

    Reply
    • Amy Tuley says

      February 25, 2019 at 12:54 pm

      Thanks, Cherie! That warms my heart!

      Reply
  9. Cindy Schwada says

    February 25, 2019 at 11:37 am

    Always in our thoughts and prayers Love Uncle Mike and Aunt Cindy

    Reply
    • Amy Tuley says

      February 25, 2019 at 12:54 pm

      Thank you!

      Reply

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