April 2019 Josiah’s intensive therapy went great! It’s an adjustment for our family for me to be gone all day, but his progress makes it worth it! This time was more difficult for Josiah because he attended school in the mornings and ending at 5:00 most days. He did some hard work! In all, Josiah […]
Quick Medical Update – Feb 2019
It has been great that there’s not a lot to update about these days! I looked and the last time I updated our blog was in November! We enjoyed Thanksgiving and Christmas with family, had several bouts of sickness running through our house, plenty of snow, and to be honest, we’re all just ready for […]
A Package!
In October’s post, I mentioned something we were super excited about, but couldn’t yet share. Today’s the day!!! Backstory: During Josiah’s intensive therapy, he worked on putting on and zipping up a coat. While for most of us, this isn’t a difficult task, doing so with one hand is quite challenging. Combined with Josiah’s vision […]
October 2018 Family Update
October was quite a busy month for us this year! Josiah worked two weeks with his intensive therapy, we celebrated Grace’s birthday, spent a few days in Branson with my parents, dentist appointments, haircuts, and doctor visits. One simply had a well-child visit, one had strep throat, another had an unexplained rash, and the most […]
Never Be the Same
Six years ago today, Josiah went to the operating room at 8:35 a.m. We anticipated surgery to be complete around 4:00 that afternoon. At 10:15 that night, the neurosurgeon came out to talk with us after surgery was finally complete. Our oldest daughter, Grace, was 5 days shy of turning 8 years old. Today, Grace […]
Feeling all the Feelings
Pretending to be a bug when taking a snack break! Josiah has started intensive therapy. Intensive = 45 hours of physical therapy, 40 hours of occupational therapy, and 20 hours of speech therapy in 20 days. It’s been a good week so far. Our weekend was full of late nights and early mornings, so he […]
Botox update – Sept 2018
First off, thank you to everyone for all your prayers! Josiah did absolutely amazing getting the iv in his arm! There was no nervousness, tears, or stress involved, and that’s a rare thing, especially when getting botox. His doctor was shocked when she came into the room and the iv was already in – he […]
September 2018 update
It’s hard to believe summer is over and school has started up! Josiah loves school and tells us every day, “It was awesome!” Everyone else is enjoying school as well. Josiah has botox in the morning. (Tuesday, September 4.) We’ll be at the hospital at 8, and sedation and botox will happen at 9:00. His […]
Quick July 2018 Update
Summertime! We’ve been having a great summer! We’ve visited Dallas with Nathan and his work with Pioneer Bible Translators (PBT), and the kids have stayed busy with church camp/activities, visiting grandparents, enjoying their two new kittens, and having time at home (probably being bored more than they’d like!) All in all, things have been great! […]
The Miracle, and a Quick Update
The Miracle This boy. His MRI is coming up on May 23rd. If the results are good, he moves to yearly MRIs. I never thought we’d reach this point. It seemed so far away. One major brain surgery, vision loss, a stroke, seizures, 16 months of chemotherapy, several leg and arm braces, 4 different hormone […]