Six years ago today, Josiah went to the operating room at 8:35 a.m. We anticipated surgery to be complete around 4:00 that afternoon. At 10:15 that night, the neurosurgeon came out to talk with us after surgery was finally complete. Our oldest daughter, Grace, was 5 days shy of turning 8 years old. Today, Grace […]
Feeling all the Feelings
Pretending to be a bug when taking a snack break! Josiah has started intensive therapy. Intensive = 45 hours of physical therapy, 40 hours of occupational therapy, and 20 hours of speech therapy in 20 days. It’s been a good week so far. Our weekend was full of late nights and early mornings, so he […]
Botox update – Sept 2018
First off, thank you to everyone for all your prayers! Josiah did absolutely amazing getting the iv in his arm! There was no nervousness, tears, or stress involved, and that’s a rare thing, especially when getting botox. His doctor was shocked when she came into the room and the iv was already in – he […]
September 2018 update
It’s hard to believe summer is over and school has started up! Josiah loves school and tells us every day, “It was awesome!” Everyone else is enjoying school as well. Josiah has botox in the morning. (Tuesday, September 4.) We’ll be at the hospital at 8, and sedation and botox will happen at 9:00. His […]
Quick July 2018 Update
Summertime! We’ve been having a great summer! We’ve visited Dallas with Nathan and his work with Pioneer Bible Translators (PBT), and the kids have stayed busy with church camp/activities, visiting grandparents, enjoying their two new kittens, and having time at home (probably being bored more than they’d like!) All in all, things have been great! […]
The Miracle, and a Quick Update
The Miracle This boy. His MRI is coming up on May 23rd. If the results are good, he moves to yearly MRIs. I never thought we’d reach this point. It seemed so far away. One major brain surgery, vision loss, a stroke, seizures, 16 months of chemotherapy, several leg and arm braces, 4 different hormone […]
Intensive Therapy – Feb. 2018
Intensive Therapy During the month of February, Josiah took a month off of school to focus on Physical (PT), Occupational (OT) and Speech therapies. Over the course of four weeks, Josiah had 3 hours of PT 5x/week, 2 hours of OT 3x/week and 1 hour of speech 2x/week. Needless to say, Josiah was pretty worn […]
Therapy, CP Clinic, and a New Leg Brace
The past two weeks have been very busy with appointments! Josiah even got a much needed haircut! Therapy Evaluations First, Josiah had speech and OT therapy evaluations completed. He did great with these and really hit it off with the new therapists. During the month of February he will be doing Intensive Therapy. Unfortunately, he’s […]
January 2018 MRI
Josiah’s MRI went really well! We didn’t get results right away since the MRI was later in the afternoon. They called this morning and told us everything still looks great! He’ll see the neurosurgeon Monday afternoon for his follow-up appointment. No Sedation! This was Josiah’s FIRST time to do the MRI while AWAKE! He didn’t […]
Nov 2017 – Jan 2018 Medical Update
MRI Josiah was scheduled to have an MRI in November. The morning of the MRI, Josiah woke up sick, so the appointment was cancelled. It has been rescheduled for next week, January 17th in the afternoon. Serial Casting Josiah did have some serial casting at the end of November. It went amazingly well! Josiah did […]