Adventures with the Tuleys!

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A Package!

November 21, 2018 by Amy Tuley 12 Comments

In October’s post, I mentioned something we were super excited about, but couldn’t yet share. Today’s the day!!! Backstory: During Josiah’s intensive therapy, he worked on putting on and zipping up a coat. While for most of us, this isn’t a difficult task, doing so with one hand is quite challenging. Combined with Josiah’s vision […]

Filed Under: Josiah's Journey, Real & Honest Tagged With: blessed, Josiah, overwhelmed

October 2018 Family Update

November 12, 2018 by Amy Tuley 2 Comments

October was quite a busy month for us this year! Josiah worked two weeks with his intensive therapy, we celebrated Grace’s birthday, spent a few days in Branson with my parents, dentist appointments, haircuts, and doctor visits. One simply had a well-child visit, one had strep throat, another had an unexplained rash, and the most […]

Filed Under: Family and Fun Tagged With: family, kids, Photos

Never Be the Same

October 3, 2018 by Amy Tuley 7 Comments

Six years ago today, Josiah went to the operating room at 8:35 a.m.  We anticipated surgery to be complete around 4:00 that afternoon.  At 10:15 that night, the neurosurgeon came out to talk with us after surgery was finally complete.  Our oldest daughter, Grace, was 5 days shy of turning 8 years old. Today, Grace […]

Filed Under: Uncategorized

Feeling all the Feelings

September 20, 2018 by Amy Tuley Leave a Comment

Pretending to be a bug when taking a snack break! Josiah has started intensive therapy. Intensive = 45 hours of physical therapy, 40 hours of occupational therapy, and 20 hours of speech therapy in 20 days. It’s been a good week so far. Our weekend was full of late nights and early mornings, so he […]

Filed Under: Faith, Real & Honest Tagged With: faith, glory, God, Honest, Intensive Therapy, Progress, Therapy

Botox update – Sept 2018

September 4, 2018 by Amy Tuley 1 Comment

First off, thank you to everyone for all your prayers! Josiah did absolutely amazing getting the iv in his arm! There was no nervousness, tears, or stress involved, and that’s a rare thing, especially when getting botox. His doctor was shocked when she came into the room and the iv was already in – he […]

Filed Under: Josiah's Journey Tagged With: Botox, Josiah

September 2018 update

September 3, 2018 by Amy Tuley Leave a Comment

It’s hard to believe summer is over and school has started up! Josiah loves school and tells us every day, “It was awesome!” Everyone else is enjoying school as well. Josiah has botox in the morning. (Tuesday, September 4.)  We’ll be at the hospital at 8, and sedation and botox will happen at 9:00. His […]

Filed Under: Uncategorized

Quick July 2018 Update

July 20, 2018 by Amy Tuley Leave a Comment

Summertime! We’ve been having a great summer! We’ve visited Dallas with Nathan and his work with Pioneer Bible Translators (PBT), and the kids have stayed busy with church camp/activities, visiting grandparents, enjoying their two new kittens, and having time at home (probably being bored more than they’d like!) All in all, things have been great! […]

Filed Under: Family and Fun, Josiah's Journey, Medical Updates Tagged With: family, Josiah, Update

The Miracle, and a Quick Update

May 10, 2018 by Amy Tuley 5 Comments

The Miracle This boy. His MRI is coming up on May 23rd. If the results are good, he moves to yearly MRIs. I never thought we’d reach this point. It seemed so far away. One major brain surgery, vision loss, a stroke, seizures, 16 months of chemotherapy, several leg and arm braces, 4 different hormone […]

Filed Under: Faith, Josiah's Journey, Medical Updates, Real & Honest Tagged With: faith, God, Josiah, Update

Intensive Therapy – Feb. 2018

March 21, 2018 by Amy Tuley 6 Comments

Intensive Therapy During the month of February, Josiah took a month off of school to focus on Physical (PT), Occupational (OT) and Speech therapies.  Over the course of four weeks, Josiah had 3 hours of PT 5x/week, 2 hours of OT 3x/week and 1 hour of speech 2x/week. Needless to say, Josiah was pretty worn […]

Filed Under: Josiah's Journey, Therapy Tagged With: Intensive Therapy, Therapy

Therapy, CP Clinic, and a New Leg Brace

February 11, 2018 by Amy Tuley Leave a Comment

The past two weeks have been very busy with appointments!  Josiah even got a much needed haircut! Therapy Evaluations First, Josiah had speech and OT therapy evaluations completed. He did great with these and really hit it off with the new therapists. During the month of February he will be doing Intensive Therapy.  Unfortunately, he’s […]

Filed Under: Josiah's Journey, Medical Updates, Therapy Tagged With: Josiah, journey, Progress, Therapy

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  • MRI Time Again!
  • Quarantine – Pre/Day1/Day2
  • February 2020 MRI Results
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